My ENS Story

My name is James R. Skinner, and I have lived with Empty Nose Syndrome (ENS) since 2011.
I first began experiencing nasal issues around the year 2000, when I developed allergies. In early 2007, something shifted suddenly. Over the span of just a day or two, I developed severe nasal inflammation. This became a serious problem, as I was already struggling to breathe due to a narrow hypopharyngeal airway.
n 2009, a local ENT recommended turbinate surgery to treat the inflammation—without first investigating the underlying cause. Because of long wait times in my home province of Nova Scotia, I traveled to see a well-known nasal surgeon in Cleveland, Ohio. He performed two surgeries. The first involved correcting a septal spur and reducing my inferior turbinates using radiofrequency (RF). The second, due to concerns about overuse of RF, was a submucosal resection. After the second procedure, he told me he had reduced the turbinates as much as was safely possible—and warned that any further surgery could cause permanent damage.
Despite this, I continued to suffer from inflammation in other parts of my nasal passage. In 2011, I visited a different local ENT who recommended a third RF turbinate reduction. I expressed concern about the safety of another procedure, especially in light of my surgical history and previous warnings. He assured me it would be fine. Unfortunately, he proceeded with another RF reduction, which ultimately resulted in Empty Nose Syndrome.
You can read a more detailed version of my story here. This website is my contribution to the ENS community.
James R. Skinner
james@nasalcripple.com
Timeline:
- 2006 Software: Developed Encore Pro Analyzer software to help CPAP users optimize their treatment
- 2008 News Article: Care to wait? All in My Head (print version)
- 2008 News Responce: Letter to the editor: Health Story Enlightening
- 2011 Video: Procedure that gave me ENS
- 2011 News Article: Not Even Half a Life (print version)
- 2011 News Article: Benefit Concert cover story in The Grapevine newspaper,
- 2011 News Article: Concert to assist Skinner with Medical costs
- 2011 Commmunity: Benefit concert to raise funds to ENS expert Dr. Steven Houser in Cleveland, Ohio
- 2011 Online: Created Nasal Cripple - Empty Nose Syndrome Facebook page
- 2011 Radio: Weston man hopes the Dept. of Health will step up - Magic 94.9 & AVR 97.7
- 2015 Medical: Received ACell + prp injectons in Columbus, Ohio - little results
- 2016 News Article: Valley Events founder's health problems could spell the end of popular service (print version)
- 2016 Medical Study: Participated in ENS Research at Ohio State University (OSU) in March and May
- 2017 Online: Launched NasalCripple.com website
- 2017 Journal Article: The first article from OSU research was a case study titled Computational Fluid Dynamics and Trigeminal Sensory Examinations of Empty Nose Syndrome Patients (I am Patient ID #1)
- 2017 Commentary: My thoughts on the first OSU article as it relates to my case
- 2017 Journal Article: The second article from the OSU research titled Investigation of the abnormal nasal aerodynamics and trigeminal functions among empty nose syndrome patients
- 2017 Medical Study: Participated in Stanford University ENS research, resulting in the journal article: The functional and psychological burden of empty nose syndrome
- 2018 News Article: New York Post My nightmare condition makes me feel like I’m constantly suffocating (print version)
- 2018 Medical Study: Participated in research by Dr Andrew Thamboo in Vancouver titled Understanding a Potentially Common Upper Airway Disorder: Empty Nose Syndrome
- 2018 Medical: Received first hyaluronic acid gel injections
- 2019 Journal Article: Third OSU ENS study published: Computational fluid dynamic analysis of aggressive turbinate reductions: is it a culprit of empty nose syndrome? 2020 Medical Study: Participated in Ohio State University research on the psychological effects of ENS
- 2022 Radio: Interviewed on Radio Health Journal - Empty Nose Syndrome: When a Routine Nose Surgery Goes Wrong
- 2022 News Article: James Skinner’s Health Left to His Own Devices
- 2022 Community: GoFundMe Campaign launched to support travel for treatment at Stanford University.
- 2022 Medical: Appintment with Dr Jayakar Nayak at Standord regarding possible implants
- 2022 Political: MLA Keith Irving writes to Nova Scotia’s health minister on my behalf
- 2023 Book Mention: This website is cited in the first medical textbook on ENS: Empty Nose Syndrome: Evidence-Based Proposals for Inferior Turbinate Management
- 2024 Politial: MLA Keith Irving advocates for my case in the Nova Scotia Legislature
- 2024 Politial: Submitted personal plea to the provincial health minister
- 2025 Medical: Nova Scotia provinical medical insurance (MSI) approves funding for nasal implants
Help: What to do if you think you may have ENS